Miller Movement

This picture.

I remember the feelings of this moment.  Sheer excitement and anticipation.

You see, we had just driven 7 hours to Gainesville, Florida to visit with the leading PWS pediatric endocrinologist...Dr. Jennifer Miller.  I had researched all about her, and we were in awe of her at the Philadelphia FPWR research conference we attended two months prior to this picture.  I can remember we had made a pit stop along the journey and when we made it back to the car I said to David and Ellie, "Let's take a picture to show everyone how excited we are that we are seeing Dr. Miller tomorrow."  David said, "Show your daddy how much you love him for driving you 7 hours, and show your mommy how much you love her for setting this appointment up!"  Literally, it was the FIRST time Ellie had initiated this precious kiss and it was absolutely perfect.  I will treasure the picture forever and ever, because we all look so, so happy.

The appointment was in two words, simply amazing.

Relief, Hope, Encouragement, Joy, Pride, Love, Peace we all feelings we felt upon leaving the appointment.  For the first time, since Ellie's diagnosis we truly felt like things were going to be okay, especially having her a part of our team.

Dr. Miller was everything we anticipated, and so much more.  I cannot put into words the appreciation we have for her.  She is beyond knowledgeable about PWS, works tirelessly for all individuals with PWS, educates other medical professionals about the syndrome, is inundated in research to eliminate the challenges of PWS, challenges families to help their children do their very best, and most of all loves our Ellie Belle and all kiddos with PWS unconditionally.  

I thank God every.single.night. for Dr. Miller.