Today was one those days...
I couldn't decide if I needed a gigantic chocolate fudge sundae, stiff drink, humongous hug...or all three😜
It's funny how God humbles me and shows me grace at the same time. Mac had to get a follow-up xray and bloodwork done (that I've strategically been putting off) to make sure the changes we've made to help his tummy continue helpful and beneficial. We had an afternoon of appointments, and based on our location in town, I decided to bite the bullet and try to squeeze this in. Well, God continues to show me just how completely opposite my dear children really are. I'm pretty sure all of Boiling Springs could hear Mac screaming bloody murder as we attempted to take his tummy xray. Ellie was a great big sister, didn't ask TOO many questions and told Mac he was brave, even though he cried. We (and I really mean, James), by the grace of God got the xray.
Next up, bloodwork. How in the world was that going to happen?!?! All I have to say is God carried us through, and put amazing nurses and technicians in our path. Mac screamed and cried, and my nerves were absolutely shut by the time we walked out...but MD 360 in Boiling Springs is hands down incredible. They were patient, positive, laid back, and so loving to both my kids. And this momma is incredibly grateful.
I think what continues to be the hardest aspect for me navigating a child after PWS, is the crying and muscle tone difference. The crying absolutely rips me out of the frame and wrecks me, and the muscle tone, oh, the muscle tone...I send most days thinking, is this Hulk, or Mac?!?! All of it is beautifully hard. Beautiful because it truly is amazing to see such emotion and strength from a little person, but hard because I know another little person works so stinking hard to make that happen daily.
I'm super proud of Mac today. He made it through something hard, and had this killer smile after it was all said and done 💗
